Executive Summary
The Micro Miracle Foundation is a nonprofit company providing financial and emotional assistance for various therapies and devices for children diagnosed with microcephaly and related disorders. The foundation will form partnerships with the families of children suffering from microcephaly to provide the required assistance. The Micro Miracle Foundations goal is to promote awareness of microcephaly in South Africa and globally as well as to reassert a sense of hope for families.
Microcephaly is a rare neurological condition in which a baby's head is smaller than the heads of other children of the same age and sex. Sometimes detected at birth, microcephaly is generally the result of the brain developing abnormally in the womb or not growing as it should after birth. Microcephaly can be caused by a variety of genetic and environmental factors. Children with microcephaly often have developmental issues.
Generally there's no treatment for microcephaly, but early intervention with supportive therapies, such as speech and occupational therapies, may help enhance with a child's development and improve quality of life.
The establishment of the foundation was inspired when Logan was diagnosed with Microcephaly in 2015. The medical bills are extremely high and so the
foundation was started to help children with Microcephaly and closely related neurological problems.
Logan was born on 4 February 2015, and diagnosed with Primary Microcephaly on 20 July 2015. His journey with microcephaly has just begun....
The foundation is not funded in any other way than the fundraisers & events that are arranged in aid thereof.
The Micro Miracle Foundations partnership with families will be a life-long partnership. The needs of the children will be assessed and support will be provided accordingly. The various forms of support range from emotional guidance, to professional therapies, to assistive devices, and possible medical intervention. Constant monitoring and feedback will be provided to ensure the developmental progress of the children.
Over time, The Micro Miracle Foundation will create positive environments within the family structure to promote the growth and development of the children as well as to increase awareness for microcephaly within the community at large.